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May 27, 2012

Today I read a post called “Had Enough of Holland?” Let me tell you, the author Sarah Hoss, hit the nail on the head! This quote: “What maddens me is that his challenging behaviour and limited abilities bar him from so much that he could and would like to do, not because he sees himself as a problem, but because other people do; when systems and processes and ‘rules’ exclude him.” Really says a lot and truth be told sums up Nick in one sentence.  Jeff and I have said for some time Nick is his own worse enemy due to his behavior  issues; however, other people have often viewed him as a problem or as his disability and Nick, being Nick, is more than willing to live down to their expectations.
I really don’t know how far we’ve really come since Emily Perl Kingsley had Jason or even since I had Nick (18 years ago), but what I do know is we, as a society, have a lot farther to go before we can truly say those with a disability are treated and valued as typical members of society are treated and valued. (Then again, I wonder, do we really want that for our loved ones {remembering how even the typical are often tormented and not valued}.)

Sarahhoss's Blog

Welcome to Holland – NOT!

(Extract from Emily Perl Kingsley:) When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives.

You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome To Holland”.

“Holland?!?” you say, “What do you mean “Holland”??? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

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